Regional Networks from Parents of Children with Down Syndrome – The SHARE Project

權益及政策關注小組--口才訓練s

The Hong Kong Jockey Club Charities Trust Community Project Grant has granted a fund to support “The SHARE Project – A Comprehensive Support Services for Families of Children with Down Syndrome” since 2005. We aim to provide a platform for mutual sharing and social support to the families of persons with Down Syndrome via our Regional Networks. This network also unifies parents whose children have Down Syndrome to fight for the rights and welfare of their children so as to improve their quality of life.

· Counselling

Provide families with appropriate counseling and referral services as needed, and offer help and advice for new parents and parents-to-be.

· Support Service for New born

Create a network for new parents to share parenting skills and experiences in order to establish mutually supportive relationships amongst those parents.

· Caring Ambassador

Recruit and train experienced parents as caring ambassadors to contact the parents of babies newly diagnosed with Down Syndrome, and enhance the basic counselling skills and confidence of the ambassadors through visits, reunions and sharing activities.

· Regional Parent’s Networks

These networks were set up by members to keep in touch with parents from different areas. Supporting relationships are built and these networks are widened through holding various regular meetings and district activities.

· Services to address the ageing issues of people with Down Syndrome

Increase parents’ knowledge of the early ageing process of their children, and offer them advice on how to take positive steps in preparing for this process.

· Community Education

Promoting the concept of integration through school talks and community activities will help increase public understanding of people with Down Syndrome and create an atmosphere of community acceptance and harmony. This can help people with Down Syndrome and their families live a better quality of life.

· Parents Training Activities

Provides a wide range of training activities to sharpen parents’ competence and confidence as the caretakers of children with Down Syndrome, as well as become trainers and advocates for the rights and welfare of their children.

Unifies parents of children who have Down Syndrome to fight for the rights and welfare of their children, promote equity and influence policy making.

We have five regional networks. Local parent meetings are held regularly to discuss matters of common concern to parents and to offer mutual support.

Hong Kong:  Hong Kong Island
Kowloon East:  Along MTR Kwun Tong and Tseung Kwan O Lines and Sai Kung
Kowloon West:  
Shek Kip Mei, along MTR Tsuen Wan Line, and from Tsing Yi, Ma Wan to Tung Chung
New Territories East:  East Rail Line from Tai Wai to Sheung Shui and Ma On Shan
New Territories West:  Tuen Mun, Yuen Long and Tin Shui Wai

Parents from each of the five regional networks elect three representatives to be in charge of local affairs, thereby forming a parents’ board consisting of 15 representatives to act as the central committee. The committee is responsible for gathering and uniting parents from all areas to meet the purpose of setting up this self-help group. Regional representatives and enthusiastic parents build up the network to provide effective mutual support to one another.

Bradbury Parents Resource Centre
Address:  G/F, Wing A, Chun Tung House, Tung Tau Estate, Kowloon, Hong Kong.
Tel:  
2718 7778  Fax2718 0811

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